What is Becker Education and Engagement Day (BEED)?
BEED began in 2023 when a group of individuals living with Becker, advocacy groups, clinicians, and researchers in Becker came together to design an opportunity for those in the Becker community to connect. The inaugural Becker Education and Engagement Day in 2023 gathered 150 individuals across four locations in the United States on December 2nd, 2023. The 2024 BEED Event was held at six locations on September 28th and brought over 330 community members together. The event was designed to foster a sense of community for people living with Becker and their families, by providing opportunities to hear from experts in Becker care and research, and most importantly, to meet others affected by the rare neuromuscular disorder.
2024 Agenda Topics
- Becker Muscular Dystrophy Overview
- Building and Coordinating Care for Becker
- Cardiac Care in Becker
- Exercise and Physical Therapy in Becker
- Becker Clinical Trials and Research
- Mental Wellness
- Everyday Strategies for Living with Becker
- Planning for the Future
Testimonials
2024 Locations
BEED returned in 2024, at locations across the country on Saturday, September 28th. Registration was free for individuals living with Becker and their families.
For more information about past locations and event information, please visit our events page. This page will be updated with 2025 information when available!