SAVE THE DATE! Becker Education and Engagement Day will return on September 28th, 2024!

What is Becker Education and Engagement Day (BEED)?

BEED began in 2023 when a group of individuals living with Becker, advocacy groups, clinicians, and researchers in Becker came together to design an opportunity for those in the Becker community to connect. The inaugural Becker Education and Engagement Day in 2023 gathered 150 individuals across four locations in the United States on December 2nd, 2023. The 2024 BEED Event was held at six locations on September 28th and brought over 350 community members together. The event was designed to foster a sense of community for people living with Becker and their families, by providing opportunities to hear from experts in Becker care and research, and most importantly, to meet others affected by the rare neuromuscular disorder.

2024 Agenda Topics

  • Becker Muscular Dystrophy Overview
  • Building and Coordinating Care for Becker
  • Cardiac Care in Becker
  • Exercise and Physical Therapy in Becker
  • Becker Clinical Trials and Research
  • Mental Wellness
  • Everyday Strategies for Living with Becker
  • Planning for the Future
Check out our Resources!

Testimonials

``I really just want to say thank you for everyone who helped organize this event. So often I have felt alone with this disease and for the first time I have an overwhelming sense of relief that I have others to relate to and who will all support each other. The impact of this event is greater than you know.``- Individual living with Becker
``This event was the only time I’ve ever been presented with a clear understanding of how Becker differs from Duchenne, and what changes to care need to made.``- Individual living with Becker
``It was inspiring to hear from other people who face the same daily challenges I do. One of the aspects of having a rare disease is a sense of isolation, but it was encouraging to see how we all cope with BMD in surprisingly similar ways.``- Individual living with Becker
``Thank you to the entire Becker community for coming together and giving me hope for my son's future``- Parent to child living with Becker

2025 Locations


BEED will return in 2025 at locations across the country on Saturday, September 27th. The full-day event will include relevant topics for the Becker community such as cardiac care, physical therapy and exercise, and include many patient panels to hear directly from those living with Becker. There will be a casual pre-event reception on Friday, September 26th.

BEED is free to attend for the Becker community. Pre-register to stay informed about event updates and reserve your spot today!

Information about travel support to attend BEED will be provided in the coming months!

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