The Becker Education and Engagement Day will be held at five locations across the country, bringing Becker-specific information, education, and connection opportunities to the community. Below is our general agenda. Detailed site-specific agendas coming soon. In the meantime, you can view our 2025 agendas here.
BEED 2026 FAQ
What is BEED?
BEED is a two-day educational and community event designed for individuals and families living with Becker muscular dystrophy. Programming includes topics relevant to both adults living with Becker and parents/caregivers of children living with Becker. Older children and teens (generally ages 10+) are welcome to attend daytime sessions if they are able to comfortably participate in a full day of programming. Please note that childcare will not be provided during the event.
What will be provided during the event?
Food and drinks will be provided throughout the event including breakfast, lunch and snacks throughout the day. Dietary needs will be collected at registration and accommodations will be provided to the best of our ability.
A Community Dinner will be held on Saturday evening and is designed to provide an opportunity for attendees, families, clinicians, and community members to connect in a relaxed setting. No formal presentations will take place during the dinner.
Is travel and hotel assistance available?
Travel assistance and hotel lodging support is no longer available for BEED. Attendees who choose to attend in person will be responsible for arranging and covering their own travel expenses and accommodations. If traveling to BEED is not feasible, a virtual attendance option is available.
Which BEED can I attend?
To help build local community connections and maximize available support resources, attendees should register for the BEED location closest to their primary residence. To help build local community connections, attendees are encouraged to register for the BEED location closest to their primary residence. If attending in person is not feasible, a virtual attendance option is also available.
Do all attendees need to register?
Yes. All individuals attending BEED must be registered, including family members and caregivers. Additional attendees may be added during registration using the Additional Party Member form.
Location Agendas & Venue Information
BEED 2026 will take place over two days: Saturday, October 17, and Sunday, October 18. Join us for a full day of programming on Saturday, followed by a half-day session on Sunday.
SATURDAY, OCTOBER 17TH Agenda
8:00am – 8:00pm Local Time
WELCOME & FOUNDATIONS OF BECKER
8:00-11:15am
8:00-9:00am
Registration and Breakfast
9:00-9:15am
Welcome Remarks
9:15-10:15am
All About Becker Muscular Dystrophy
10:15-11:15am
Cardiac Considerations for Becker
Break: 11:15am - 11:30am
BECKER RESEARCH LANDSCAPE
11:30-12:30pm
11:30-12:15pm
Research Updates and What’s Ahead
12:15-12:30pm
Recap and Audience Q&A
Lunch: 12:30pm - 1:15pm
LIVING WITH BECKER
1:15-2:45pm
1:15-2:00pm
Dystrophin and the Brain
2:00-2:45pm
Walks of Life: Individuals with Becker Panel
Break: 2:45pm - 3:00pm
AFTERNOON TRACK SESSIONS
3:00-4:40pmAdult Track (Concurrent to Pediatric Track)
3:00-3:30pm
Career and Employment with Becker
3:30-4:00pm
How to Talk About Becker with Family, Partners, Kids, and Friends
4:00-4:40pm
Relationship Dynamics and Intimacy
Pediatric Track (Concurrent to Adult Track)
3:00-3:30pm
Pediatric Care and Transition Considerations for Becker
3:30-4:00pm
Parenting a Child with Becker: Finding a Balance
4:00-4:40pm
Parent and Caregiver Point of View Panel
DAY ONE CLOSING REMARKS
4:45-5:00pmExhibitor Reception & Informal Break: 5:00pm - 6:00pm
Community Dinner: 6:30pm - 8:00pm
SUNDAY, OCTOBER 18TH Agenda
7:30am – 1:15pm Local Time
BREAKFAST & CONNECTION
7:30-8:30am
7:30-8:30am
Breakfast
7:45-8:30am
Breakfast Breakout: Women of Becker
MOVEMENT, THERAPY, AND INDEPENDENCE
8:30-11:00am
8:30-8:45am
Welcome & Day One Recap
8:45-9:45am
Physical Therapy, Exercise, and Stretching for Becker
9:45-10:45am
Occupational Therapy and Maintaining Independence Through Equipment/Technology for Becker
10:45-11:00am
PT/OT Panel
Break: 11:00am - 11:15am
THRIVING WITH BECKER ROUNDTABLE ACTIVITY
11:15-12:45pm
Travel and Accessibility
Stretching and Wheelchair Positioning
Adaptable Living: Home Modifications, Equipment, Vehicles
Hobbies and Life with Becker
Parenting a Child with Becker
School and College Resources
Community Support
BUILDING COMMUNITY & STAYING CONNECTED
12:45-1:00pmEvent Closing & To-Go Lunch: 1:00pm - 1:15pm
BEED 2026 will take place over two days: Saturday, October 17, and Sunday, October 18. Join us for a full day of programming on Saturday, followed by a half-day session on Sunday.
SATURDAY, OCTOBER 17TH Agenda
8:00am – 8:00pm Local Time
WELCOME & FOUNDATIONS OF BECKER
8:00-11:15am
8:00-9:00am
Registration and Breakfast
9:00-9:15am
Welcome Remarks
Erica Goude, MS, CCRP
9:15-10:15am
All About Becker Muscular Dystrophy
John Day, MD, PhD
10:15-11:15am
Cardiac Considerations for Becker
Matthew Wheeler, MD, PhD
Break: 11:15am - 11:30am
BECKER RESEARCH LANDSCAPE
11:30-12:30pm
11:30-12:15pm
Research Updates and What’s Ahead
Courtney Grotski, MD
12:15-12:30pm
Recap and Audience Q&A
Erica Goude, MS, CCRP
Lunch: 12:30pm - 1:15pm
LIVING WITH BECKER
1:15-2:45pm
1:15-2:00pm
Dystrophin and the Brain
Erik Henricson, PhD, MPH
Van Kim Ma, MD
Van Kim Ma, MD
2:00-2:45pm
Walks of Life: Individuals with Becker Panel
Erica Goude, MS, CCRP
Panel: Elias Bracamonte, Randy Molinari
Panel: Elias Bracamonte, Randy Molinari
Break: 2:45pm - 3:00pm
AFTERNOON TRACK SESSIONS
3:00-4:40pmAdult Track (Concurrent to Pediatric Track)
3:00-3:30pm
Career and Employment with Becker
To Be Confirmed
3:30-4:00pm
How to Talk About Becker with Family, Partners, Kids, and Friends
Kent Drescher, PhD
4:00-4:40pm
Relationship Dynamics and Intimacy
Debra Crabtree, PhD
Pediatric Track (Concurrent to Adult Track)
3:00-3:30pm
Pediatric Care and Transition Considerations for Becker
Carolina Tesi Rocha, MD
Prasanth Surampudi, MD
Prasanth Surampudi, MD
3:30-4:00pm
Parenting a Child with Becker: Finding a Balance
Van Kim Ma, MD
4:00-4:40pm
Parent and Caregiver Point of View Panel
Carolina Tesi Rocha, MD
Christina Fraboni
Christina Fraboni
DAY ONE CLOSING REMARKS
4:45-5:00pmExhibitor Reception & Informal Break: 5:00pm - 6:00pm
Community Dinner: 6:30pm - 8:00pm
SUNDAY, OCTOBER 18TH Agenda
7:30am – 1:15pm Local Time
BREAKFAST & CONNECTION
7:30-8:30am
7:30-8:30am
Breakfast
7:45-8:30am
Breakfast Breakout: Women of Becker
Billur Moghaddam, MD
Matthew Wheeler, MD, PhD
Rhiannon Hubbard
Matthew Wheeler, MD, PhD
Rhiannon Hubbard
MOVEMENT, THERAPY, AND INDEPENDENCE
8:30-11:00am
8:30-8:45am
Welcome & Day One Recap
Erica Goude, MS, CCRP
8:45-9:45am
Physical Therapy, Exercise, and Stretching for Becker
Tina Doung, MD
9:45-10:45am
Occupational Therapy and Maintaining Independence Through Equipment/Technology for Becker
Faith Stevens, PT, DPT, PCS
10:45-11:00am
PT/OT Panel
Tina Doung, MD
Faith Stevens, PT, DPT, PCS
Faith Stevens, PT, DPT, PCS
Break: 11:00am - 11:15am
THRIVING WITH BECKER ROUNDTABLE ACTIVITY
11:15-12:45pm
Travel and Accessibility
Kerry Johnson
Stretching and Wheelchair Positioning
Tina Doung, MD
Adaptable Living: Home Modifications, Equipment, Vehicles
Faith Stevens, PT, DPT, PCS
Hobbies and Life with Becker
Erica Goude, MS, CCRP
Carter Londono
Carter Londono
Parenting while Living with Becker
Debra Crabtree, LCSW
Elias Bracamonte
Elias Bracamonte
School and College Resources
Matthias Matsubayashi
Sahar Din
Sahar Din
BUILDING COMMUNITY & STAYING CONNECTED
12:45-1:00pmEvent Closing & To-Go Lunch: 1:00pm - 1:15pm
The Venue
The Westin Sacramento Riverfront Hotel
4800 Riverside Blvd,
Sacramento, CA 95822
BEED 2026 will take place over two days: Saturday, October 17, and Sunday, October 18. Join us for a full day of programming on Saturday, followed by a half-day session on Sunday.
SATURDAY, OCTOBER 17TH Agenda
8:00am – 8:00pm Local Time
WELCOME & FOUNDATIONS OF BECKER
8:00-11:15am
8:00-9:00am
Registration and Breakfast
9:00-9:15am
Welcome Remarks
Nassim Rad, MD
Bill Rooney, PhD
Bill Rooney, PhD
9:15-10:15am
All About Becker Muscular Dystrophy
Nassim Rad, MD
10:15-11:15am
Cardiac Considerations for Becker
Patrick Evers, MD, MBA, MSc
Break: 11:15am - 11:30am
BECKER RESEARCH LANDSCAPE
11:30-12:30pm
11:30-12:15pm
Research Updates and What’s Ahead
Erika Finanger, MD, MS
12:15-12:30pm
Recap and Audience Q&A
Nassim Rad, MD
Bill Rooney, PhD
Bill Rooney, PhD
Lunch: 12:30pm - 1:15pm
LIVING WITH BECKER
1:15-2:45pm
1:15-2:00pm
Dystrophin and the Brain
James Poysky, PhD
Bill Rooney, PhD
Bill Rooney, PhD
2:00-2:45pm
Walks of Life: Individuals with Becker Panel
Bill Rooney, PhD
Panel: Omar Sheikh, Robert Francis "Frank" Warda
Panel: Omar Sheikh, Robert Francis "Frank" Warda
Break: 2:45pm - 3:00pm
AFTERNOON TRACK SESSIONS
3:00-4:40pmAdult Track (Concurrent to Pediatric Track)
3:00-3:30pm
Career and Employment with Becker
Michelle Taylor, MA, CRC
3:30-4:00pm
How to Talk About Becker with Family, Partners, Kids, and Friends
Wen Pei Ridenour, BSN, RN
4:00-4:40pm
Relationship Dynamics and Intimacy
Amanda Appel, MD, MPH
Pediatric Track (Concurrent to Adult Track)
3:00-3:30pm
Pediatric Care and Transition Considerations for Becker
Erika Finanger, MD, MS
3:30-4:00pm
Parenting a Child with Becker: Finding a Balance
Christine Rattigan, LICSW
4:00-4:40pm
Parent and Caregiver Point of View Panel
Christine Rattigan, LICSW
Panel: Jude Bergkamp, Emily Bergkamp, Jamie LaCotta, Megan Nelson, Tate Nelson
Panel: Jude Bergkamp, Emily Bergkamp, Jamie LaCotta, Megan Nelson, Tate Nelson
DAY ONE CLOSING REMARKS
4:45-5:00pmExhibitor Reception & Informal Break: 5:00pm - 6:00pm
Community Dinner: 6:30pm - 8:00pm
SUNDAY, OCTOBER 18TH Agenda
7:30am – 1:15pm Local Time
BREAKFAST & CONNECTION
7:30-8:30am
7:30-8:30am
Breakfast
7:45-8:30am
Breakfast Breakout: Women of Becker
Nassim Rad, MD
Wen Pei Ridenour, BSN RN
Wen Pei Ridenour, BSN RN
MOVEMENT, THERAPY, AND INDEPENDENCE
8:30-11:00am
8:30-8:45am
Welcome & Day One Recap
Nassim Rad, MD
Bill Rooney, PhD
Bill Rooney, PhD
8:45-9:45am
Physical Therapy, Exercise, and Stretching for Becker
Claudia Senesac, PT, PhD, PCS
9:45-10:45am
Occupational Therapy and Maintaining Independence Through Equipment/Technology for Becker
Claudia Senesac, PT, PhD, PCS
10:45-11:00am
PT/OT Panel
Claudia Senesac, PT, PhD, PCS
Break: 11:00am - 11:15am
THRIVING WITH BECKER ROUNDTABLE ACTIVITY
11:15-12:45pm
Travel and Accessibility
James Poysky, PhD
Stretching and Wheelchair Positioning
Claudia Senesac, PT, PhD, PCS
Adaptable Living: Home Modifications, Equipment, Vehicles
Claudia Senesac, PT, PhD, PCS
Hobbies and Life with Becker
Amy Rosenfeld
Parenting a Child with Becker
Christine Rattigan, LICSW
School and College Resources
Caitlin Sevey
BUILDING COMMUNITY & STAYING CONNECTED
12:45-1:00pmEvent Closing & To-Go Lunch: 1:00pm - 1:15pm
The Venue
Hilton Portland Downtown
921 SW Sixth Ave.,
Portland, OR 97204
BEED 2026 will take place over two days: Saturday, October 17, and Sunday, October 18. Join us for a full day of programming on Saturday, followed by a half-day session on Sunday.
SATURDAY, OCTOBER 17TH Agenda
8:00am – 8:00pm Local Time
WELCOME & FOUNDATIONS OF BECKER
8:00-11:15am
8:00-9:00am
Registration and Breakfast
9:00-9:15am
Welcome Remarks
Gina Killian, DNP, APRN
Kristy Lewandowski, MA, CCC-SLP
Kristy Lewandowski, MA, CCC-SLP
9:15-10:15am
All About Becker Muscular Dystrophy
Omer Abdul Hamid, MD
S H Subramony, MD
S H Subramony, MD
10:15-11:15am
Cardiac Considerations for Becker
Barry Byrne, MD, PhD
Break: 11:15am - 11:30am
BECKER RESEARCH LANDSCAPE
11:30-12:30pm
11:30-12:15pm
Research Updates and What’s Ahead
Julie Berthy, DNP, ARNP
Kelly Rock, PT, DPT, PhD, PCS
Kelly Rock, PT, DPT, PhD, PCS
12:15-12:30pm
Recap and Audience Q&A
Gina Killian, DNP, APRN
Kristy Lewandowski, MA, CCC-SLP
Kristy Lewandowski, MA, CCC-SLP
Lunch: 12:30pm - 1:15pm
LIVING WITH BECKER
1:15-2:45pm
1:15-2:00pm
Dystrophin and the Brain
Christina Ortega, PsyD
2:00-2:45pm
Walks of Life: Individuals with Becker Panel
Kristy Lewandowski, MA, CCC-SLP
Panel: Jeff Chesak, Evan Hakamaki, Charlie Riesebeck
Panel: Jeff Chesak, Evan Hakamaki, Charlie Riesebeck
Break: 2:45pm - 3:00pm
AFTERNOON TRACK SESSIONS
3:00-4:40pmAdult Track (Concurrent to Pediatric Track)
3:00-3:30pm
Career and Employment with Becker
Sandra Rancano
3:30-4:00pm
How to Talk About Becker with Family, Partners, Kids, and Friends
Gina Killian, DNP, APRN
4:00-4:40pm
Relationship Dynamics and Intimacy
Kristy Lewandowski, MA, CCC-SLP
Pediatric Track (Concurrent to Adult Track)
3:00-3:30pm
Pediatric Care and Transition Considerations for Becker
Omer Abdul Hamid, MD
3:30-4:00pm
Parenting a Child with Becker: Finding a Balance
Alicia Alcide, MPH, BSN, RN, CPN
4:00-4:40pm
Parent and Caregiver Point of View Panel
Gina Killian, DNP, APRN
Panel: Sarah Fraden, Jony Hansen
Panel: Sarah Fraden, Jony Hansen
DAY ONE CLOSING REMARKS
4:45-5:00pmExhibitor Reception & Informal Break: 5:00pm - 6:00pm
Community Dinner: 6:30pm - 8:00pm
SUNDAY, OCTOBER 18TH Agenda
7:30am – 1:15pm Local Time
BREAKFAST & CONNECTION
7:30-8:30am
7:30-8:30am
Breakfast
7:45-8:30am
Breakfast Breakout: Women of Becker
Kansas Sampson, APRN
Mindy Cameron
Mindy Cameron
MOVEMENT, THERAPY, AND INDEPENDENCE
8:30-11:00am
8:30-8:45am
Welcome & Day One Recap
Kristy Lewandowski, MA, CCC-SLP
Gina Killian, DNP, APRN
Gina Killian, DNP, APRN
8:45-9:45am
Physical Therapy, Exercise, and Stretching for Becker
Donovan Lott, PT, PhD, CSCS
9:45-10:45am
Occupational Therapy and Maintaining Independence Through Equipment/Technology for Becker
Joyce Severance, OTR/L
10:45-11:00am
PT/OT Panel
Donovan Lott, PT, PhD, CSCS
Joyce Severance, OTR/L
Joyce Severance, OTR/L
Break: 11:00am - 11:15am
THRIVING WITH BECKER ROUNDTABLE ACTIVITY
11:15-12:45pm
Travel and Accessibility
Mindy Cameron
Jeff Chesak
Jeff Chesak
Stretching and Wheelchair Positioning
Donovan Lott, PT, PhD, CSCS
Adaptable Living: Home Modifications, Equipment, Vehicles
Joyce Severance, OTR/L
Hobbies and Life with Becker
Rob Harris
Parenting while Living with Becker
Anthony Navarro
School and College Resources
Katie Butler
Nutrition
Ellen K Bowser, MS, RDN, LDN, FAND, RN
BUILDING COMMUNITY & STAYING CONNECTED
12:45-1:00pmEvent Closing & To-Go Lunch: 1:00pm - 1:15pm
The Venue
Orlando World Central Marriott
8701 World Center Drive,
Orlando, FL 32881-6358
BEED 2026 will take place over two days: Saturday, October 17, and Sunday, October 18. Join us for a full day of programming on Saturday, followed by a half-day session on Sunday.
SATURDAY, OCTOBER 17TH Agenda
8:00am – 8:00pm Local Time
WELCOME & FOUNDATIONS OF BECKER
8:00-11:15am
8:00-9:00am
Registration and Breakfast
9:00-9:15am
Welcome Remarks
Arun Varadhachary, MD, PhD
9:15-10:15am
All About Becker Muscular Dystrophy
Erin Langton, MD
10:15-11:15am
Cardiac Considerations for Becker
Forum Kamdar, MD, PhD
Break: 11:15am - 11:30am
BECKER RESEARCH LANDSCAPE
11:30-12:30pm
11:30-12:15pm
Research Updates and What’s Ahead
Arun Varadhachary, MD, PhD
12:15-12:30pm
Recap and Audience Q&A
Arun Varadhachary, MD, PhD
Lunch: 12:30pm - 1:15pm
LIVING WITH BECKER
1:15-2:45pm
1:15-2:00pm
Dystrophin and the Brain
Natalie Truba, PhD
2:00-2:45pm
Walks of Life: Individuals with Becker Panel
Arun Varadhachary, MD, PhD
Panel: Jay Larson, Andy Rusch, Brian Springett
Panel: Jay Larson, Andy Rusch, Brian Springett
Break: 2:45pm - 3:00pm
AFTERNOON TRACK SESSIONS
3:00-4:40pmAdult Track (Concurrent to Pediatric Track)
3:00-3:30pm
Career and Employment with Becker
Greg Willett
3:30-4:00pm
How to Talk About Becker with Family, Partners, Kids, and Friends
Melissa Grove, MS, LPC
4:00-4:40pm
Relationship Dynamics and Intimacy
Pat Moeschen
Pediatric Track (Concurrent to Adult Track)
3:00-3:30pm
Pediatric Care and Transition Considerations for Becker
Aravindhan Veerapandiyan, MD
Katheryn Gambetta, MD
Katheryn Gambetta, MD
3:30-4:00pm
Parenting a Child with Becker: Finding a Balance
Natalie Truba, PhD
4:00-4:40pm
Parent and Caregiver Point of View Panel
Alexis Hazlett
Panel: Kristin Morehouse, Zack Morehouse, Richalle Ritts, Bina Trivedi
Panel: Kristin Morehouse, Zack Morehouse, Richalle Ritts, Bina Trivedi
DAY ONE CLOSING REMARKS
4:45-5:00pmExhibitor Reception & Informal Break: 5:00pm - 6:00pm
Community Dinner: 6:30pm - 8:00pm
SUNDAY, OCTOBER 18TH Agenda
7:30am – 1:15pm Local Time
BREAKFAST & CONNECTION
7:30-8:30am
7:30-8:30am
Breakfast
7:45-8:30am
Breakfast Breakout: Women of Becker
Forum Kamdar, MD, PhD
Richalle Ritts
Richalle Ritts
MOVEMENT, THERAPY, AND INDEPENDENCE
8:30-11:00am
8:30-8:45am
Welcome & Day One Recap
Arun Varadhachary, MD, PhD
8:45-9:45am
Physical Therapy, Exercise, and Stretching for Becker
Abby Dierker, PT, DPT
9:45-10:45am
Occupational Therapy and Maintaining Independence Through Equipment/Technology for Becker
Catherine Anderson, MOT, OTR/L, BCP
10:45-11:00am
PT/OT Panel
Abby Dierker, PT, DPT
Catherine Anderson, MOT, OTR/L, BCP
Catherine Anderson, MOT, OTR/L, BCP
Break: 11:00am - 11:15am
THRIVING WITH BECKER ROUNDTABLE ACTIVITY
11:15-12:45pm
Travel and Accessibility
Greg Willett
Stretching and Wheelchair Positioning
Abby Dierker, PT, DPT
Adaptable Living: Home Modifications, Equipment, Vehicles
Catherine Anderson, MOT, OTR/L, BCP
Hobbies and Life with Becker
Weston Minor
Parenting while Living with Becker
Jay Larson
School and College Resources
Alexis Hazlett, MSN, RN, CPN
BUILDING COMMUNITY & STAYING CONNECTED
12:45-1:00pmEvent Closing & To-Go Lunch: 1:00pm - 1:15pm
The Venue
Le Meridien St Louis Clayton
7730 Bonhomme Avenue,
St. Louis, MO 63105
BEED 2026 will take place over two days: Saturday, October 17, and Sunday, October 18. Join us for a full day of programming on Saturday, followed by a half-day session on Sunday.
SATURDAY, OCTOBER 17TH Agenda
8:00am – 8:00pm Local Time
WELCOME & FOUNDATIONS OF BECKER
8:00-11:15am
8:00-9:00am
Registration and Breakfast
9:00-9:15am
Welcome Remarks
John Brandsema, MD
Paula Clemens, MD
Paula Clemens, MD
9:15-10:15am
All About Becker Muscular Dystrophy
Paula Clemens, MD
Jessie Nance, MD
Jessie Nance, MD
10:15-11:15am
Cardiac Considerations for Becker
Andreas Barth, MD, PhD
Break: 11:15am - 11:30am
BECKER RESEARCH LANDSCAPE
11:30-12:30pm
11:30-12:15pm
Research Updates and What’s Ahead
Christopher Spurney, MD, FAHA
12:15-12:30pm
Recap and Audience Q&A
John Brandsema, MD
Paula Clemens, MD
Paula Clemens, MD
Lunch: 12:30pm - 1:15pm
LIVING WITH BECKER
1:15-2:45pm
1:15-2:00pm
Dystrophin and the Brain
Sarah Wright, DO
2:00-2:45pm
Walks of Life: Individuals with Becker Panel
Paula Clemens, MD
Panel: Scott Butler, Steve Wiercinski
Panel: Scott Butler, Steve Wiercinski
Break: 2:45pm - 3:00pm
AFTERNOON TRACK SESSIONS
3:00-4:40pmAdult Track (Concurrent to Pediatric Track)
3:00-3:30pm
Career and Employment with Becker
Shannon Wood
3:30-4:00pm
How to Talk About Becker with Family, Partners, Kids, and Friends
Hillary Cohen, LICSW
4:00-4:40pm
Relationship Dynamics and Intimacy
Nora Renthal, MD, PhD
Gaby Vargas, MD, MPH
Gaby Vargas, MD, MPH
Pediatric Track (Concurrent to Adult Track)
3:00-3:30pm
Pediatric Care and Transition Considerations for Becker
John Brandsema, MD
3:30-4:00pm
Parenting a Child with Becker: Finding a Balance
Raina Carwell, MSW
4:00-4:40pm
Parent and Caregiver Point of View Panel
John Brandsema, MD
Panel: Ryan Barbera, Kristen Cooper, Monica Shea, Jess Westman
Panel: Ryan Barbera, Kristen Cooper, Monica Shea, Jess Westman
DAY ONE CLOSING REMARKS
4:45-5:00pmExhibitor Reception & Informal Break: 5:00pm - 6:00pm
Community Dinner: 6:30pm - 8:00pm
SUNDAY, OCTOBER 18TH Agenda
7:30am – 1:15pm Local Time
BREAKFAST & CONNECTION
7:30-8:30am
7:30-8:30am
Breakfast
7:45-8:30am
Breakfast Breakout: Women of Becker
Teresa Wang, MD
Kristen Cooper
Kristen Cooper
MOVEMENT, THERAPY, AND INDEPENDENCE
8:30-11:00am
8:30-8:45am
Welcome & Day One Recap
John Brandsema, MD
Paula Clemens, MD
Paula Clemens, MD
8:45-9:45am
Physical Therapy, Exercise, and Stretching for Becker
Aileen Jones, DPT
9:45-10:45am
Occupational Therapy and Maintaining Independence Through Equipment/Technology for Becker
Lindsay Busarello, MS, ORT/L
10:45-11:00am
PT/OT Panel
Lindsay Busarello, MS, ORT/L
Aileen Jones, DPT
Aileen Jones, DPT
Break: 11:00am - 11:15am
THRIVING WITH BECKER ROUNDTABLE ACTIVITY
11:15-12:45pm
Travel and Accessibility
Pat Cusick
Mike Voto
Mike Voto
Stretching and Wheelchair Positioning
Aileen Jones, DPT
Adaptable Living: Home Modifications, Equipment, Vehicles
Lindsay Busarello, MS, ORT/L
Hobbies and Life with Becker
Jess Westman
Parenting while Living with Becker
Raina Carwell
Steve Wiercinski
Steve Wiercinski
School and College Resources
Annie Tulkin
BUILDING COMMUNITY & STAYING CONNECTED
12:45-1:00pmEvent Closing & To-Go Lunch: 1:00pm - 1:15pm
The Venue
The Royal Sonesta
20 Massachusetts Ave NW,
Washington, DC 20001
BEED 2026 will take place over two days: Saturday, October 17, and Sunday, October 18. Join us for a full day of programming on Saturday, followed by a half-day session on Sunday.
SATURDAY, OCTOBER 17TH Agenda
9am – 2:45pm Pacific Time
WELCOME & FOUNDATIONS OF BECKER
9:00-11:15am
9:00-9:15am
Welcome Remarks
Erica Goude, MS, CCRP
9:15-10:15am
All About Becker Muscular Dystrophy
John Day, MD, PhD
10:15-11:15am
Cardiac Considerations for Becker
Matthew Wheeler, MD, PhD
Break: 11:15am - 11:30am
BECKER RESEARCH LANDSCAPE
11:30-12:30pm
11:30-12:15pm
Research Updates and What’s Ahead
Courtney Grotski, MD
12:15-12:30pm
Recap and Audience Q&A
Erica Goude, MS, CCRP
Lunch: 12:30pm - 1:15pm
LIVING WITH BECKER
1:15-2:45pm
1:15-2:00pm
Dystrophin and the Brain
Erik Henricson, PhD, MPH
Van Kim Ma, MD
Van Kim Ma, MD
2:00-2:45pm
Walks of Life: Individuals with Becker Panel
Erica Goude, MS, CCRP
Panel: Elias Bracamonte, Randy Molinari
Panel: Elias Bracamonte, Randy Molinari
SUNDAY, OCTOBER 18TH Agenda
8:30am – 11:00am Pacific Time
MOVEMENT, THERAPY, AND INDEPENDENCE
8:30-11:00am
8:30-8:45am
Welcome & Day One Recap
Erica Goude, MS, CCRP
8:45-9:45am
Physical Therapy, Exercise, and Stretching for Becker
Tina Doung, MD
9:45-10:45am
Occupational Therapy and Maintaining Independence Through Equipment/Technology for Becker
Faith Stevens, PT, DPT, PCS
10:45-11:00am
PT/OT Panel
Tina Doung, MD
Faith Stevens, PT, DPT, PCS
Faith Stevens, PT, DPT, PCS