SAVE THE DATE! Becker Education and Engagement Day will return on September 28th, 2024!

Save the Date: October 17-18th 2026 Full Registration Open!

Location Update: The Baltimore, MD event has moved to Washington, DC

What is Becker Education and Engagement Day (BEED)?

Becker Education and Engagement Day (BEED) is a free event that brings together individuals living with Becker muscular dystrophy, family members, clinicians, researchers, and advocacy organizations to learn, connect, and engage with the Becker community.

Since its launch in 2023, BEED has grown into one of the largest educational and community events focused on Becker muscular dystrophy, bringing together more than 450 attendees across the United States in 2025.

2026 Agenda Topics

DAY 1:

  • All About Becker Muscular Dystrophy
  • Cardiac Considerations for Becker
  • Becker Research Landscape: Updates and What’s Ahead
  • Dystrophin and the Brain: Mental Wellness and Coping with Becker
  • Career and Employment with Becker (Adult Track)
  • How to Talk About Becker with Family, Partners, Kids, and Friends (Adult Track)
  • Intimacy and Relationships (Adult Track)
  • Pediatric Care and Transition Considerations for Becker (Pediatric Track)
  • Parenting a Child with Becker: Finding a Balance (Pediatric Track)
  • Parent and Caregiver Point of View Panel (Pediatric Track)

DAY 2:

  • Physical Therapy, Exercise, and Stretching for Becker
  • Occupational Therapy: Activities of Daily Living & Maintaining Independence
  • Round Tables:
    • Accessible Travel
    • School & College Resources
    • Partners & Spouses
    • Stretching & Wheelchair Positioning
    • Hobbies and Life with Becker
    • Preparing for the Future
  • Building Community & Staying Connected
REGISTER NOW!

Testimonials

“In our Becker community, every story is a spark. Every connection, a lifeline. Together, we are rewriting what resilience looks like. We are creating hope for our Becker community. We are unstoppable.”- BEED 2025 Attendee
``This event was the only time I’ve ever been presented with a clear understanding of how Becker differs from Duchenne, and what changes to care need to made.``- Individual living with Becker
``It was inspiring to hear from other people who face the same daily challenges I do. One of the aspects of having a rare disease is a sense of isolation, but it was encouraging to see how we all cope with BMD in surprisingly similar ways.``- Individual living with Becker
``Thank you to the entire Becker community for coming together and giving me hope for my son's future``- Parent to child living with Becker
``I really just want to say thank you for everyone who helped organize this event. So often I have felt alone with this disease and for the first time I have an overwhelming sense of relief that I have others to relate to and who will all support each other. The impact of this event is greater than you know.``- Individual living with Becker

2026 Locations

BEED will be returning in October, 2026 to five locations: Portland, OR, Sacramento, CA, St. Louis, MO, Washington, DC, and Orlando, FL.

Sponsors