Becker Education and Engagement Day Home Page - Becker Education & Engagement

What is Becker Education and Engagement Day (BEED)?

The Becker Education and Engagement Day (BEED) began in 2023 when a group of individuals living with Becker, advocacy groups, clinicians, and researchers in Becker came together to design an opportunity for those living with Becker to connect. In 2025, BEED brought together over 450 Becker community members at locations across the US. BEED will return in October 2026 with an expanded multi-day format to bring relevant information to the Becker community. BEED 2026 events will be held in Portland, OR, Sacramento, CA, St. Louis, MO, Baltimore, MD, and Orlando, FL. We hope you will join us, pre-register to receive event updates, travel support information, and more!

2026 Agenda Topics

DAY 1:

All About Becker Muscular Dystrophy
Cardiac Considerations for Becker
Becker Research Landscape: Updates and What’s Ahead
Dystrophin and the Brain: Mental Wellness and Coping with Becker
Career and Employment with Becker (Adult Track)
How to Talk About Becker with Family, Partners, Kids, and Friends (Adult Track)
Intimacy and Relationships (Adult Track)
Pediatric Care and Transition Considerations for Becker (Pediatric Track)
Parenting a Child with Becker: Finding a Balance (Pediatric Track)
Parent and Caregiver Point of View Panel (Pediatric Track)

DAY 2:

Physical Therapy, Exercise, and Stretching for Becker
Occupational Therapy: Activities of Daily Living & Maintaining Independence
Round Tables:
- Accessible Travel
- School & College Resources
- Partners & Spouses
- Stretching & Wheelchair Positioning
- Hobbies and life with Becker
- Preparing for the future
Building Community & Staying Connected

PRE-REGISTER NOW!

Testimonials

“In our Becker community, every story is a spark. Every connection, a lifeline. Together, we are rewriting what resilience looks like. We are creating hope for our Becker community. We are unstoppable.”- BEED 2025 Attendee

``This event was the only time I’ve ever been presented with a clear understanding of how Becker differs from Duchenne, and what changes to care need to made.``- Individual living with Becker

``It was inspiring to hear from other people who face the same daily challenges I do. One of the aspects of having a rare disease is a sense of isolation, but it was encouraging to see how we all cope with BMD in surprisingly similar ways.``- Individual living with Becker

``Thank you to the entire Becker community for coming together and giving me hope for my son's future``- Parent to child living with Becker

``I really just want to say thank you for everyone who helped organize this event. So often I have felt alone with this disease and for the first time I have an overwhelming sense of relief that I have others to relate to and who will all support each other. The impact of this event is greater than you know.``- Individual living with Becker

2025 Locations

BEED returned in September 2025 to five locations, Seattle, WA, Sacramento, CA, St. Louis, MO, Philadelphia, PA, and Orlando, FL.