The Becker Education and Engagement Day will be held at five locations across the country to provide Becker specific information to the community. Review general event information below and navigate to a specific location tab to see venue information and location specific agendas.
Each location will host a casual pre-meeting evening reception on Friday, September 26th. The informal reception will be open for event registrants at the hotel from 6-8pm and will allow attendees to check-in for the event, receive conference materials, mingle with others living with Becker and visit vendor booths. Light refreshments and appetizers will be available throughout the evening.
On Saturday, September 27th each BEED location will follow the same agenda format from 9am-6pm local time. The day will include morning general sessions for all attendees and afternoon adult-specific and pediatric-specific breakout tracks. The event will conclude with a reception for attendees. See the agenda overview below.
Event logistics:
- Please note, there will be no childcare available at BEED. Content of the event will be targeted towards adults, please consider this as you plan your attendance.
- Food and drinks will be provided throughout the event including breakfast, lunch and snacks throughout the day. Dietary needs will be collected at registration and accommodations will be provided to the best of our ability.
- Parking for attendance at BEED will be covered through validation and vouchers at the event
- If travel is a barrier to your attendance at BEED please indicate your travel requirements in your registration form, you will be contacted by the event planning team to discuss your needs. Travel assistance is limited and on a first-come first-served basis and is only available for the event location closest to where the registrant lives.
- Attendees are encouraged to register to the event closest to them to hear from local care teams and meet others from the surrounding areas
The Day’s Agenda
SATURDAY • SEPTEMBER 27TH | 9AM – 6PM Local Time
BECKER MUSCULAR DYSTROPHY CARE
9:00-12:00pmBecker Overview & Care Providers
Cardiac Screening and Care in Becker
Building your Becker Care
Occupational Therapy: Addressing Activities of Daily Living
Physical Therapy: Movement and Exercise
BECKER RESEARCH LANDSCAPE
12:00-12:30pmBecker Clinical Trials and Research
Lunch: 12:30 - 1:30PM
LIVING WITH BECKER
1:30-4:30pmNavigating Life with Becker: Patient Panel
Adult Track
Relationships & Communication Panel
Changing the Narrative around Independence and Equipment: Patient Panel
Employment & Financial Planning
Pediatric Track
Transition from Pediatric to Adult Care: Provider Panel
Caregiver Panel: Parenting a Child Living with Becker
School Resources
Reception: 4:30 - 6:00PM
The Venue
Kimpton Sawyer Hotel
500 J Street
Sacramento, CA 95814
The Day’s Agenda
SATURDAY • SEPTEMBER 27TH | 9AM – 6PM PDT
BECKER MUSCULAR DYSTROPHY CARE
9:00-12:00pmBecker Overview & Care ProvidersJohn Day, MD, PhD
Cardiac Screening and Care in BeckerYoni Dayan, MD
Building your Becker Care PanelJohn Day, MD, PhD
Yoni Dayan, MD
Amber Rapperson, LVN
Yoni Dayan, MD
Amber Rapperson, LVN
Occupational Therapy: Addressing Activities of Daily LivingJamie Bunning, MSOT, OTR/L
Physical Therapy: Movement and Developing an Exercise PlanTina Doung, MPT, PhD
BECKER RESEARCH LANDSCAPE
12:00-12:30pmBecker Clinical Trials and ResearchSean Romeo
Lunch: 12:30 - 1:30PM
LIVING WITH BECKER
1:30-4:30pmNavigating Life with Becker: Patient PanelLynea Kaethler, MS
Individuals living with Becker
Individuals living with Becker
Adult Track
Relationships & Communication PanelConnie Wolford, MSN, FNP-BC
Individuals living with Becker
Individuals living with Becker
Changing the Narrative around Independence and Equipment: Patient PanelConnie Wolford, MSN, FNP-BC
Individuals living with Becker
Individuals living with Becker
Employment & Financial PlanningKelly Piacenti
Pediatric Track
Transition of CareJessica Guzman, RN
Prasanth Surampudi, MD
Jenna Klotz, MD
Prasanth Surampudi, MD
Jenna Klotz, MD
Caregiver Panel: Parenting a Child living with BeckerTBD
School ResourcesJessica Guzman, RN
Building a Becker CommunityErica Goude, MS, CCRP
Closing Remarks
Reception: 4:30 - 6:00PM
The Venue
Hyatt Regency Bellevue
900 Bellevue Way NE
Bellevue, WA 98004
The Day’s Agenda
SATURDAY • SEPTEMBER 27TH | 9AM – 6PM PDT
BECKER MUSCULAR DYSTROPHY CARE
9:00-12:00pmBecker Overview & Care ProvidersNassim Rad, MD
Dan Hurwitz, MD
Dan Hurwitz, MD
Cardiac Screening and Care in BeckerDavid Owens, MD
Building your Becker Care PanelNassim Rad, MD
Dan Hurwitz, MD
David Owens, MD
Dan Hurwitz, MD
David Owens, MD
Occupational Therapy: Addressing Activities of Daily LivingApril Trenaman, OTR/L
Physical Therapy: Movement and Developing an Exercise PlanKirsten Zilke, PT, DPT
BECKER RESEARCH LANDSCAPE
12:00-12:30pmBecker Clinical Trials and ResearchBill Rooney, PhD
Lunch: 12:30 - 1:30PM
LIVING WITH BECKER
1:30-4:30pmNavigating Life with Becker: Patient PanelBill Rooney, PhD
Individuals living with Becker
Individuals living with Becker
Adult Track
Relationships & Communication PanelJulia Fram, PhD
Individuals living with Becker
Individuals living with Becker
Changing the Narrative around Independence and Equipment: Patient PanelJulia Fram, PhD
Individuals living with Becker
Individuals living with Becker
Employment & Financial PlanningShannon Wood
Pediatric Track
Transition of CareDan Hurwitz, MD
Kara Smith, RN, BSN, CRRN
WenPei Ridenour, RN
Kara Smith, RN, BSN, CRRN
WenPei Ridenour, RN
Caregiver Panel: Parenting a Child living with BeckerKara Smith, RN, BSN, CRRN
School ResourcesJill Anne Castle, M.Ed
Building a Becker CommunityTBD
Closing Remarks
Reception: 4:30 - 6:00PM
The Venue
Florida Hotel and Conference Center
1500 Sand Lank Road
Orlando, FL 32809
The Day’s Agenda
SATURDAY • SEPTEMBER 27TH | 9AM – 6PM EDT
BECKER MUSCULAR DYSTROPHY CARE
9:00-12:00pmBecker Overview & Care ProvidersSub Submarony, MD
Omer Abdul-Hamid, MD
Omer Abdul-Hamid, MD
Cardiac Screening and Care in BeckerRenata Shih, MD
Building your Becker Care PanelSub Submarony, MD
Gina Killian, DNP, APRN
Renata Shih, MD
Omer Abdul Hamid, MD
Gina Killian, DNP, APRN
Renata Shih, MD
Omer Abdul Hamid, MD
Occupational Therapy: Addressing Activities of Daily LivingJoyce Severance, OTR/L
Physical Therapy: Movement and Developing an Exercise PlanClaudia Senesac, PT, PhD, PCS
BECKER RESEARCH LANDSCAPE
12:00-12:30pmBecker Clinical Trials and ResearchKrista Vandenborne, PhD
Lunch: 12:30 - 1:30PM
LIVING WITH BECKER
1:30-4:30pmNavigating Life with Becker: Patient PanelKristy Lewandowski, MA, CCC-SLP
Individuals living with Becker
Individuals living with Becker
Adult Track
Relationships & Communication PanelKristy Lewandowski, MA, CCC-SLP
Individuals living with Becker
Individuals living with Becker
Changing the Narrative around Independence and Equipment: Patient PanelKristy Lewandowski, MA, CCC-SLP
Individuals living with Becker
Individuals living with Becker
Employment & Financial PlanningShannon Ahmed, MSc
Pediatric Track
Transition of CareOmer Abdul-Hamid , MD
Gina Killian, DNP, APRN
Gina Killian, DNP, APRN
Caregiver Panel: Parenting a Child living with BeckerGina Killian, DNP, APRN
School ResourcesKuna Tavalin
Building a Becker CommunityTBD
Closing Remarks
Reception: 4:30 - 6:00PM
The Venue
Hyatt Regency St Louis at the Arch
315 Chestnut Street,
St. Louis, MO, USA. 63102
The Day’s Agenda
SATURDAY • SEPTEMBER 27TH | 9AM – 6PM CDT
BECKER MUSCULAR DYSTROPHY CARE
9:00-12:00pmBecker Overview & Care ProvidersAravindhan Veerapandiyan, MD
Arun Varadhachary, MD, PhD
Arun Varadhachary, MD, PhD
Cardiac Screening and Care in BeckerAndreas Barth, MD, PhD
Building your Becker Care PanelAravindhan Veerapandiyan, MD
Arun Varadhachary, MD, PhD
Andreas Barth, MD, PhD
Arun Varadhachary, MD, PhD
Andreas Barth, MD, PhD
Occupational Therapy: Addressing Activities of Daily LivingLauren Litwiller, MOT, OTR/L
Physical Therapy: Movement and Developing an Exercise PlanDonovan Lott, PT, PhD, CSCS
BECKER RESEARCH LANDSCAPE
12:00-12:30pmBecker Clinical Trials and ResearchArun Varadhachary, MD, PhD
Lunch: 12:30 - 1:30PM
LIVING WITH BECKER
1:30-4:30pmNavigating Life with Becker: Patient PanelChristina Trout, RN, MSN
Ben Thompson, LMFT
Individuals living with Becker
Ben Thompson, LMFT
Individuals living with Becker
Adult Track
Relationships & Communication PanelBen Thompson, LMFT
Individuals living with Becker
Individuals living with Becker
Changing the Narrative around Independence and Equipment: Patient PanelBen Thompson, LMFT
Individuals living with Becker
Individuals living with Becker
Employment & Financial PlanningLori Becker, MBA
Pediatric Track
Transition of CareAravindhan Veerapandiyan, MD
Christina Trout, RN, MSN
Christina Trout, RN, MSN
Caregiver Panel: Parenting a Child living with BeckerChristina Trout, RN, MSN
School ResourcesMarissa Lozano, M. Ed
Building a Becker CommunityTBD
Closing Remarks
Reception: 4:30 - 6:00PM
The Venue
LOEWS Philadelphia
1200 Market Street,
Philadelphia, 19107
The Day’s Agenda
SATURDAY • SEPTEMBER 27TH | 9AM – 6PM EDT
BECKER MUSCULAR DYSTROPHY CARE
9:00-12:00pmBecker Overview & Care ProvidersJohn Brandsema, MD
Paula Clemens, MD
Paula Clemens, MD
Cardiac Screening and Care in BeckerTeresa Wang, MD
Building your Becker Care PanelJohn Brandsema, MD
Paula Clemens, MD
Teresa Wang, MD
Paula Clemens, MD
Teresa Wang, MD
Occupational Therapy: Addressing Activities of Daily LivingAllyson Wong, OTRL, OTD, MPH
Physical Therapy: Movement and Developing an Exercise PlanMallory Gardner, PT, DPT, PCS
BECKER RESEARCH LANDSCAPE
12:00-12:30pmBecker Clinical Trials and ResearchPaula Clemens, MD
Lunch: 12:30 - 1:30PM
LIVING WITH BECKER
1:30-4:30pmNavigating Life with Becker: Patient PanelPatrick Cusick
Individuals living with Becker
Individuals living with Becker
Adult Track
Relationships & Communication PanelAreti Vassilopoulos, PhD
Individuals living with Becker
Individuals living with Becker
Changing the Narrative around Independence and Equipment: Patient PanelAreti Vassilopoulos, PhD
Individuals living with Becker
Individuals living with Becker
Employment & Financial PlanningBruce Sham, CLF
Pediatric Track
Transition of CareJohn Brandsema, MD
Paula Clemens, MD
Julianne Meiser, MSS, LCSW
Paula Clemens, MD
Julianne Meiser, MSS, LCSW
Caregiver Panel: Parenting a Child living with BeckerJulianne Meiser, MSS, LCSW
School ResourcesAnnie Tulkin, MS
Building a Becker CommunityTBD
Closing Remarks
Reception: 4:30 - 6:00PM